Resources for Individuals and Caregivers

Hemophilia Foundation of Minnesota/Dakotas offers a wide variety of resources for persons with Hemophilia and their caretakers. Those resources include: 

Employee/Individuals Resources

• Presentations and written materials. 
• Woman to Woman Initiative offers individual support to women with bleeding disorders.
• Emergency Assistance Funds for people with hemophilia and other inherited bleeding disorders and their families.
• Camp for children ages 8-17 attend one week of summer camp. Provides children with the opportunity to participate with their peers in activities that include: 
  - Learning about their disease. 
  - Empowering them to better cope with the physical limitations bleeding disorders
     present. 
  - Providing the skills they need to affect their own medical interventions.
• Scholarships available for high school graduates to attend college, technical/vocational, or university, as well as for family members in the hemophilia community.
• Quarterly Newsletter, Veinline, contains up-to-date easy-to-understand information about hemophilia and its complications such as HIV/AIDS and hepatitis. 
• Advocacy brings awareness of the disease and research efforts to the capital.
• Annual Meeting and Medora Retreat -a retreat for individuals with Hemophilia and their family members that provides an update on research and living with Hemophilia.

Caregiver Resources

• Presentations and written materials.  
• Support workshops for parents of children with hemophilia.
• Retreats for couples and families.
• Quarterly Newsletter, Veinline, contains up-to-date easy-to-understand information about hemophilia and its complications such as HIV/AIDS and hepatitis. 
• Emergency Assistance Program: small grants provided for hotel rooms, mileage, etc. for families who need to bring their child to the hospital.  
• Annual Meeting and Medora Retreat ? a retreat for individuals with Hemophilia and their family members that provides an update on research and living with Hemophilia.
• Parents Empowering Parents: A weekend parenting program which focuses on building skills to most effectively deal with raising children with bleeding disorders.